Dad suffered through an almost decade long bout with Alzheimer’s Disease before he died. Mom nursed him at home, at a very high cost to herself. I remember, just before he slipped away into that horrible loss of self, he asked me to come home and talk with him. We took a walk around the block.
“This is probably the last time I’ll be able to talk with you,” he said.
He knew it was coming. As he always did, Dad told me that he loved me, that he was proud of me, and that he wished he had been a better father.
I often attend Alzheimer’s patients in the nursing home or hospital. When I look into their faces, I see Dad, and I see my future. Alzheimer’s occurs with much greater frequency in those who are genetically predisposed. Short-term memory loss is one of the first symptoms of Alzheimer’s. I’ve already been dealing with that the past few years.
Myrna died so suddenly. She was diagnosed with cancer in the late spring, and she died in the early fall, less than 5 months later. When I tell the Karaoke Queen this, she replies:
“She was lucky. She didn’t linger. Everybody would like to die like that.”
The agitation and anger of Alzheimer’s sufferers is often noted. What, exactly, are they agitated and angry about? My observation of my father and my patients leads me to believe that it is social isolation that is the cause. Loss of the ability to communicate and to be understood drives people mad. Deprivation of social contact is the ultimate horror for humans.
“How much longer do I have?” I often wonder.
Dad didn’t enter into full-blown Alzheimer’s until his mid-70s.
I decided to become an LPN for a variety of reasons: income, useful work, the desire to be helpful, etc. Going to school has helped me to focus on the future, instead of focusing only on the past and the loss of Myrna. I also decided to become an LPN because I’m hoping that the continuing intellectual and physical challenge helps me to maintain my intellectual and physical health.
I’m not sure that I buy the health care field’s re-naming of “senility” into “Alzheimer’s.” I believe it when I’m working, because believing it is part of the terms of my employment. Re-naming of things into diseases has been a mania during my lifetime. Old age and the breakdown of our bodily systems is inevitable.
Something within me was determined to survive after the loss of Myrna. What that thing is, I don’t know. Intellectually, I didn’t want to continue without her. If social isolation is the curse of humans, then social interaction is our salvation. People came to my rescue. Co-workers tried very hard to reach out to me. Fellow musicians, like Big Joe, gave me something to live for just because they showed up to play and laugh. My sisters talked to me as much as I wanted to talk. And, the Karaoke Queen supported me and stayed with me, even when she had to listen to all that talk about just how special and amazing was Myrna (which is, in fact, true).
So, I’m continuing to fight to live. I’m not going softly into the night.
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